When Suzi asked me if I would mind writing a blog about my experience of being a full-time carer for my elderly parents, I thought it would be easy to put my thoughts down on paper. Actually, though, it’s been extremely difficult, not least because I’ve found myself going through several drafts agonising about whether I’ve written too much about me and not enough about my parents.
My anxiety on this point probably stems form the fact that, like many of my sex, I have probably internalised the belief that we women have a special caring gene stamped all the way through our DNA like “Blackpool” through a stick of rock, and that, therefore, if we do not devote every waking moment of every day to others, or dare express any needs of our own, we must be “unnatural”, “cold” and “selfish”.
But we don’t need to internalise this belief, as there are always plenty of people ready to remind us of it. Not long after I first moved down here, I left a post on an internet message board devoted to advice on family problems, asking for tips on how I could build more of a life for myself around my caring duties for my parents, as I was beginning to feel a bit isolated, having moved hundreds of miles from my support network of friends to a more provincial community where there was a lot less going on. I was astonished to receive a response suggesting that I should “get local authority help for them as soon as possible, as it’s not fair that the care of your vulnerable parents should be dependent on someone as incredibly selfish as you.”
Since people like that are going to damn me whatever I write, I therefore make no apologies – this blog entry is focused on my feelings and experiences alone. Not because I don’t think my parents’ feeling are important, but because I’m not them and I can’t speak for them, I can only speak for myself.
One thing which I find very curious and very sad is that, when I tell people that I care full-time for my elderly mother and father, they look at me with sympathy, as if I’ve just announced that I have a terminal disease. It was a voluntary decision – I love my parents, enjoy their company, consider myself very lucky indeed to be spending large swathes of time with them while I still have the chance, and (while I acknowledge that caring for them has meant some very difficult compromises, as well) giving up paid work outside the home to go and live with them has also given me the time and space to do a lot of things I wouldn’t have been able to do while juggling a full-time job – and yet many of the people I meet assume that I feel like the child caught when the music stops at the end of a game of Hot Potato.
This probably stems largely from the societal belief that the only work which matters is paid work outside the home.
As full-time parents, the unemployed and those on incapacity benefit will know all too well, if you can’t answer the question “What do you do?” with something that involves a big salary, then you are all too often viewed as boring, valueless to society, insignificant and possibly congenitally stupid. Carers have little status and few rights in our society – carers’ allowance is derisory and when I do need to re-enter the workforce, probably in my 50s or 60, I’m a bit concerned about how potential employers will view the large “gap” in my CV.
But I’ve found that caring for elderly parents has also really brought home to me the social prejudices that exist about single, childless women. First of all, there was the automatic assumption in my wider family that I, not my married sister, would be the one to care for my parents. While I was more than happy to fulfil this role, it was because I wanted to, not because I thought that it was my rightful duty, and I still resent the assumption that, because I didn’t have a partner or children, there couldn’t possibly be anything at all important in my life that I might mind giving up.
Then there’s the caricature stereotypes that people try to hang on you. While working single women who live alone are often decried as hard-nosed, ambitious bitches, fecklessly ignoring their biological clock in a quest for ball-breaking career dominance and heading for a lonely, unfulfilled old age as their rightful comeuppance, at least people assume they are having some fun in the present. But there’s something about the stereotype of the “woman who stayed at home to look after mother” that has no redeeming features at all. I am presumed to change every night out of my horn-rimmed glasses, hard-wearing tweeds and sensible shoes into my high-necked flannelette nightie, before wistfully dreaming of the man I will never now meet who might have made sense of my life.
I think being a full-time carer for my parents has really brought home to me how narrowly most of society views fulfilment, as being entirely dependent on having a partner, children and/or a high-paid job. And where women are concerned, let’s face it, largely the first two.
People often say to me “Well, obviously, your sister can’t do more for your parents – she’s got her own family to think about.” To which I want to reply “And who, then, are her parents? Strangers?” As a society, we are so locked into the idea of the heterosexual nuclear family as being the only unit that matters, that we are in danger of closing ourselves off to the other relationships and paths that are possible.